Its always encouraging to hear testimonials of others who have been through the same thing and come out the end.
We are finding it difficult to find anecdotal accounts of recovery from Pyroluria, there seem to be lots of posts scattered around the internet of individuals who have had confirmed urine kryptopyrrole tests or pyroluria diagnoses. They initially report benefit with the typical Zinc, P5P/B6, Manganese therapy but in most cases don’t post much further after that.
There are also sporadic posts on the web of individuals claiming to have cured there pyroluria indefinitely, rather than with the typical vitamin/mineral maintenance therapy. One user claimed that they had eliminated there Pyroluria with an intense mercury chelation protocol. It makes me wonder what comes first here, the heavy metals or Pyroluria. We know that heavy metals can interfere with DNA and Heme synthesis.
So yeah, we’d love to hear from anyone who has successfully managing or overcome Pyroluria.
- Crowded upper front teeth
- Poor dream recall or nightmares
- Pale skin that sunburns easily
- Stretch marks on skin
- Adrenal exhaustion & Low thyroid function
- White spots and/or ridges on nails
- Anxiety and Panic disorder
- Poor appetite and sense of smell/taste
- Morning nausea and a tendency to skip breakfast
- Cold hands and/or feet
- Tendency to gravitate towards a lower protein and vegetarian diet
- Low stomach acid
- Fruity breath and body odour
- Poor stress tolerance
- Digestive disturbances
As always the above symptoms can be caused by a number of other conditions, so it is essential to seek professional diagnosis.
Pyroluria Support forum is now live and you can access it from this link until i get the menu sorted. – Pyroluria Forum
Hopefully this will give everyone a place to discuss Pyroluria and to hopefully get abit of support for this condition, which is often severely lacking by the people that should be offering it.
Together hopefully we can bring more awareness to this condition.
Welcome to Pyroluria Support.com everyone. I have setup this blog and forum as a support resource for those suffering from a relatively unknown but common condition called Pyroluria.
I recently had a diagnosis of Pyroluria after suffering over a decade of chronic undiagnosed health problems. Luckily tenacity paid off and i stumbled across Pyroluria. Hopefully this website can bring much more publicity to this horrible condition if left un-treated.
Id love to hear from anyone else who has Pyroluria.